Category Archives: profiles

profiles of D/deaf and hard of hearing academics

Profile: Alex Lu

PhD Student, University of Toronto, Canada

Field of expertise: Computational Biology

Years of experience (since start of PhD): 5 years 

Describe your hearing: Profoundly deaf; I’m oral and voice for myself, but I use ASL interpreters for professional interactions

Background

I grew up mainstreamed in Vancouver. For most of grade school, I used hearing aids —back when I was in elementary school, we still had those clunky FM systems that attached to your hearing aids through wires and boots. I was lucky to have a hearing resource teacher who recognized the importance of sign language, and she brought in a Deaf teacher to teach me and a few other Deaf/hard-of-hearing students the basics in grade 9. In grade 11, I decided to stop using my hearing aids entirely. Part of my decision was practical—I had a progressive hearing loss, and it was getting to the point where I felt like my hearing aids weren’t helping enough to be worth the headache they gave me from amplifying everything. But the other reason was because I had grown to resent what they represented: how hearing people always expected me to “fix” myself to be acceptable to them. My parents and teachers were furious—I was in the middle of a highly intensive International Baccalaureate program and they didn’t know how I would get through it. But I managed to cobble together strategies, including basic ASL and borrowing notes from classmates. I’ve used ASL interpretation for my academic needs ever since. 

I’m also queer, and outside of academia, I do a lot of activism in bridging Deaf and queer communities. For a while before my PhD (and even well into it), I was active in many non-profits. Some of my fondest memories include negotiating accessibility in Pride boardrooms, emceeing Deaf poets for spoken word festival events, and moderating all-Deaf panels about prison justice. 

How did you get to where you are?

Many people in academia will talk about how they’ve always known what they’ve wanted to study since they were very small. I am definitely not one of those people. Rather, I got to my current interests by taking opportunities as they arose, and by being receptive to advice. I began studying computational biology as an undergraduate because a family friend mentioned it might appeal to me. I had many interests and didn’t know whether I wanted to major in English or history or a science; I figured that their advice was as good as any. As I worked through my degree, I met a graduate student who asked me to volunteer for a lab that wanted someone with computational skills, and I specifically got involved in image analysis because that was the data the lab worked with. That experience opened the door to my PhD; I applied to just two graduate schools upon finishing my undergraduate, and I figured that if I didn’t get into either, I would just start my career. But one graduate school liked my background enough that they accepted me, and I’ve been working in image analysis and computer vision ever since. 

That isn’t to say that I am not passionate about what I do; I love working on challenges in big biological image datasets, and it really challenges my creative problem solving skills. But I am fundamentally a very flexible person, and I can easily see alternative histories where I stumbled into something radically different—comparative literature, maybe, or psychology—and would have been equally as happy and passionate about that. In retrospect, taking opportunities as they arose was a very good strategy for me as a marginalized disabled person—it meant that I was always surrounded by people who were eager to invite me into their space, so I attribute a lot of my success to being easy-going enough that I could let these people guide my journey. 

What is the biggest professional challenge? How do you mitigate this challenge?

Anything that involves travel. I never know whether I will be able to find qualified accessibility services when I travel for conferences or other academic commitments. For conferences, my school has been terrific about having my regular academic ASL interpreters fly out with me: we have flown to New York, Los Angeles, and Vancouver together, and that guarantees that I can be fully involved in the important networking connections that are being made there. However, this is not a problem I have fully solved. I’m due to spend three months in Switzerland for a research exchange soon, and since they use a different sign language than mine, I wasn’t able to find local services. I’ve had to come up with more creative solutions; my current plan is to have my interpreters in Toronto Skype with me remotely for regular meetings, and I will have to see how this works out. But in general, I think about academic mobility a lot for disabled people. While a lot of my able-bodied peers are able to take jobs and opportunities anywhere in the world, I feel like there are more hurdles for me, and I’m trying to find ways to not let this limit the steps I can take in my career. 

What is an example of accommodation that you either use or would like to use in your current job?

I have an awesome accessibility plan with my school, which gives me “block times.” Three or four afternoons a week, I have an ASL interpreter present for any needs that might pop up: a collaborator or student showing up for a meeting, impromptu chats with my supervisor or colleagues, seminars that I learn about last-minute but seem interesting. The interpreter is booked regardless of there’s something happening or not, and if it turns out to be a quiet afternoon, she spends her time on prep or coordination. 

This accommodation has really made a massive impact on my success in my program and career. For example, it makes collaborations a lot easier: while I could book interpretation for each specific meeting happening, having to set a date three weeks ahead to confirm interpretation is a lot less convenient than a collaborator just dropping in with short notice to discuss how a project is proceeding. Similarly, I don’t have to devote a lot of energy into keeping abreast of departmental and campus events to be able to request interpretation ahead of time—I can spontaneously go to seminars as other graduate students mention them to me. It’s really leveled the playing field a lot in terms of how much time and energy I have to devote to being engaged and available as a scientist, compared to hearing people. 

What advice would you give your former self?

You work way better 9 to 5! I can’t believe how much more productive I became after I started sleeping 8 hours a night and giving myself more downtime—sometimes fewer working hours is more! 

Any funny stories you want to share?

I once helped host an ASL-interpreted theatre production. I taught the director how to say “thank you” in ASL, so she could wave goodbye to the community members I had invited as they were leaving the show. Unfortunately, between the start and end of the play, she forgot that the sign starts from the mouth, not the chin, and ended up signing “fuck you” all night… (People had a good sense of humor about it).

Profile: Dr. Stephanie Kerschbaum

Associate Professor of English, University of Delaware, Newark, DE, USA

Field of expertise: Writing Studies

  • Website
  • Twitter: @slkersch (although I rarely use it)

Describe your hearing: I wear two behind-the-ear hearing aids and speechread well in one-on-one and small-group settings. Due to years of childhood speech therapy, I use my voice to communicate for myself when conversing with hearing people and sign when around other signing deaf people.

Here’s me—in this professional head shot my short brown hair, red rectangular glasses, white skin, and many-toothed smile are readily visible, but my two behind-the-ear hearing aids are not. I have been deaf since birth. When I was about one, my parents learned I was deaf and my mom immediately enrolled us in parent-child sign language classes. I learned to sign before I could talk, but once I began talking, my mother reports that I largely stopped signing. 

I never completely let go of that early language learning, however—while I do not have deaf family members (other than those who have late-in-life hearing loss), I did attend a school with a significant population of deaf students from 5th through 8th grade, and began using sign language interpreters and CART when I went to college at The Ohio State University. I went to the University of Wisconsin-Madison to start graduate school in literary studies, but after taking an “Intro to Comp Studies” course as an MA student, ended up getting my PhD in Rhetoric and Composition.

I’m currently an associate professor of English at the University of Delaware, where I think a lot about different forms of writing and composing with and around disability as well as the ways that disability matters to all kinds of everyday experiences. I didn’t start focusing on disability studies until I was well into my first tenure-track job, though—it took me a long time to make explicit connections between my lived experiences of negotiating communication, interactional access, and building an academic career with the kind of theorizing I was doing around how people name and articulate differences—of all kinds—during everyday interactions. 

One of the biggest challenges that I face—and that is common to many disabled faculty members—involves building inclusive environments in which I can authentically and fully participate. By this, I mean situations where I can contribute in a timely fashion to an ongoing conversation or meeting in a way that enables others to attend to what I am sharing and incorporate it into the discussion. Too often, disabled faculty members experience environments where their participation is marginalized or mediated through interfaces, material arrangements, and patterns of behavior that frustrate rather than enable inclusion. 

In a room of 10 people I’m not likely to be able to completely follow a back and forth conversation without an interpreter. And even when an interpreter is in the room, I almost always still need to ask for some shifts in the interaction. Right now almost all of the responsibility for making those changes falls on me. So the hardest part is getting others in the room to participate in the work that is involved in making the kinds of changes needed.

An accommodation I’d love to have is actually an improvement on one that I already have and enjoy using. I love working with sign language interpreters. But there’s so much that goes on around making that work proceed well that I’d really like to have automatically be part of the experience: getting access copies of scripted remarks without having to go through complicated negotiations each time; well-structured processes for securing interpreting in which highly qualified interpreters well-trained in academic transliteration are readily available; having presenters, meeting organizers, and committee chairs consider interpreters’ needs when setting up rooms, sending out meeting materials, and more.

white young man with helmet on Stromboli volcano with gas steam in background and rocky landscape

Profile: Dr. Oliver Lamb

NRC Research Associate, University of North Carolina at Chapel Hill, USA

Field of expertise: Geophysical monitoring of natural phenomena, with a particular interest in volcanoes.

Years of experience (since start of PhD): Nearly 6.

Describe your hearing: Moderately hard of hearing in both ears, since birth. I have worn hearing aids since the age of 4.

Education/BackgroundI grew up in a small village in Wales about 10 mins drive out of the university town of Aberystwyth. My first school was completely in welsh. This might sound daunting for a young HoH kid from an English speaking family, but looking back I don’t think I was really fazed by this. I think it was helped by having supportive and understanding teachers and a teacher’s assistant, always happy to repeat things for me (thank you Mrs. Fuller!). My lucky streak with helpful teachers continued into my English secondary school (ages 11-18), where I never really had any major issues with my hearing. Obviously, there were plenty of noisy classes, but a vast majority of teachers were able to keep them relatively quiet when necessary.

I cannot remember meeting any other deaf or HoH kid my age, but I also don’t remember ever feeling like I was the ‘weird kid’. I guess growing up with a father and grandfather who also wore hearing aids probably made me feel somewhat ‘normal’.

white man in bright sunshine (hat and sunglasses) on a rocky volcano barren of vegetation

How did you get to where you are?

I’ve always had an interest (some might call a passion) in volcanoes. I was lucky to visit Mt. St. Helens when my family visited the US when I was aged 8. I think it wasn’t until I spoke to a careers advisor a few years later that I realized that I could work on volcanoes as a career. From then on, I always had a determination to study geology. After school, I went to the University of Oxford where I got a Masters in Earth Sciences (equivalent of a bachelor plus master degrees). From there I was fortunate to land in the University of Liverpool to pursue a PhD. There, I worked on a project looking at seismic and infrasonic data from various lava dome eruptions around the world, and also carried out a little experimental work with acoustic emissions in the lab. After graduating in 2017, I was eager to take up whatever postdoctoral job offer might come way, and that is how I ended up in North Carolina, USA, in early 2018.

 What is your typical day like?

It’s really hard to say I have a typical day really. Each day brings a new task or challenge, whether it is coding a new way to analyze or plot my data, or preparing equipment for fieldwork, or writing and editing an article or grant application. Most of my days are spent writing either code or scientific articles. The coding can be tedious and frustrating, but it is such a nice feeling when it works and you get a great result and plot at the end. The article writing has also been very difficult (I always struggle with the discussion section), but I think I’m slowly getting the hang of it. When I am not writing, I am probably grappling with some equipment or instrument, or attending various seminars, or preparing for an upcoming conference.

The days spent on fieldwork are probably the most special though. I have been fortunate enough to travel around the world to places such as Mexico, Guatemala, Italy, and Chile. The preparation for fieldwork can be very intense, because lots of different arrangements have to be made in a short amount of time and in the right order. When I’m in the field, I am typically running around digging holes to put seismometers into the ground and/or leaving infrasound microphones to listen to very low frequency noises around the volcano. It can be exhausting, back-breaking work (each station might include 30-40 kilos of equipment and batteries), but it is well worth it when you get a chance to work in some truly spectacular landscapes. Also, it is a huge privilege for me to meet the many wonderful and generous people around the world, most of whom who share a passion for what I do.

 What is the biggest professional challenge (as educator or researcher)? How do you mitigate this challenge?

Managing the workload and the high level of anxiety that comes with it. I do my best to keep on top of projects, but I often find myself neglecting tasks that I told myself that I would do weeks or months before. It was, and still is, a huge learning curve for me when I started my postdoctoral career because of the greater responsibilities I suddenly faced. This includes managing projects, producing articles, writing grant proposals, rewriting grant proposals, managing equipment for fieldwork, preparing for fieldwork, checking there’s enough money in the budget for fieldwork, managing administrative bureaucracy, rewriting grant proposals again, and data management, all with one eye on the somewhat unclear future because I have no clear idea of where or when the next postdoctoral or lecturing position might come available. The anxiety has been very difficult to manage at times, but I am grateful that I have had and still have a network of colleagues, friends and family that I can talk to.

What is an example of accommodation that you either use or would like to use in your current job?

This is not really a specific accommodation, but one of my biggest and most frequent frustrations is having to deal with terrible acoustics during talks, whether they are department seminars or during conferences. More speakers need to learn how to project their voice to the whole room, with or without a microphone. I should not have to sit in the first few rows to hear you. Similarly, it’s an instant turn off for me whenever a speaker at a conference declines to use the provided microphone just so they can move around the room or stage. There’s no point in trying to seem like a dynamic TED speaker when I (and I suspect a lot of other people in the same room) can’t even hear what you’re saying.

Having said that, it would be great to have personal microphone/transmitter kit that I can bring to talks that will help me hear the speaker. Something that doesn’t disturb the speaker and/or other talk attendees and transmits the speakers voice directly to my ears via Bluetooth or telecoil. I have seen a few systems like this out there but none of them seemed to have quite the right specifications for me to consider using them. I’m all ears to anyone who might have suggestions for something like this.

 What advice would you give your former self?

Be more confident in our own abilities, but don’t be afraid to ask for help on even the most menial things.

 Any funny stories you want to share?

This might not be a funny story for some people, but what ho. I am a pretty heavy sleeper, and have slept through lots of noisy situations. However, when I camped next to active volcanoes I have been woken up by large noisy rockfalls (in Mexico) or a particularly large explosion (in Guatemala). It’s good to know my ears are at least tuned to noises that I definitely need to pay attention to!

The sound we can see: working with hearing loss in the field

When I was 19 I went for a checkup with an audiologist and found out that I was hearing only 90% of what I should be. The doctor said that for my age, this was a high level of hearing loss, and attributed it possibly to the intense course of antibiotics I took for kidney failure when I was one year old. He suggested that I come back yearly to repeat the hearing exam, to verify if my ability further decreased below my current hearing levels. Of course I ignored this advice and never went back. When I started my graduate studies six years later, I decided it was finally time to visit the audiologist again, because I discovered that I could not hear the species of frog I had decided to base my research on. This was a very scary moment for me. How did I find myself in this situation?

In the last year of my undergraduate studies I took an ecology course and fell in love with the topic. I knew I wanted to earn a master’s degree in ecology, ideally working with animal populations. In Brazil, one has to take a standardized exam to enter a graduate program. I traveled 440 km to take the test and passed; I began my studies in the Federal University of Paraná located in Curitiba, in the south of Brazil. Among all the available mentors, there was one who carried out research on ecological dynamics of insects and anuran amphibians. I chose his lab and wrote a project proposal examining the population dynamics of an endemic species of stream frog (Hylodes heyeri) in the Atlantic Forest in Brazil, specifically Pico do Marumbi State Park, Piraquara, in the state of Paraná. Much of what I was to be doing was completely new to me: I had never worked with frogs and I also had never practiced the mark-and-recapture method. I thus faced a steep learning curve and had to learn a LOT about lab and fieldwork from my team and my mentor. In my first field outing, during which I was to learn how to identify and capture the species I would study, I discovered that I could not hear the frog. A labmate who accompanied me to the field said, “Are you listening? The frog is so close to us.” He thought I was not hearing the frog due to lack of experience, or because of the background noise of the stream. I worried that something else was amiss, and this finally prompted me to go back to my audiologist. There, I discovered that I had lost 2% more of my hearing, and this loss compromised treble sounds, those in the range of high to very high frequencies, precisely overlapping my frog’s vocalizations.

Now, I’m a PhD student and I use hearing aids programmed specifically for my hearing loss, which primarily encompasses frequencies above 4000 Hz. I was initially ashamed to wear hearing aids because people mocked them. But I didn’t consider changing projects, because I knew I could get help localizing the frog. I also knew there would be ways for me to analyze the sound without necessarily hearing it. Even with hearing aids, however, I can only hear the call of my frog when I am no more than 4 meters away. Other members of my lab can detect the sound of the frog from much farther away, even when they are 20 meters or more from the stream. This means that for every survey I carry out in the field, I need a person to accompany me to guide me to the frog, using their sense of hearing to identify the sound. But the assistance I receive in the field goes beyond locating my frog; the field can be dangerous for many reasons: I may not hear dangerous animals—such as puma, collared peccary, or leopards—approaching; and I may lose track of my team if people call me from too far away. Even for scientists without hearing loss, it is advisable not to carry out fieldwork alone.

In recent years, I have had the opportunity to learn Brazilian sign language (LIBRAS) in graduate courses. I am happy that it is a requirement for my degree! When I am in the field I communicate primarily with gestures. I am lucky that my frogs are diurnal, because I am able to see my companions in the field, making communication much easier. Once my companion hears the frog, they look at me so I can read their lips or we make gestures so as to not scare the frogs. Sometimes I use headphones, point the microphone of my recorder in the general direction of the frog, and increase the volume to better understand where the sound comes from—this trick of using my main research tool (my recorder) to find my frogs was taught to me by a friend who also carried out research in bioacoustics and had the challenge of finding a tiny mountain frog species that hid in leaf-litter (thank you, André Confetti). My frogs are also tiny, only 4 cm long. They camouflage in the streams and spook very easily, but in order to obtain my data, I need to get as close as 50 cm from the frog. Only then can I really start. The aim of my work is to analyze the effect of anthropogenic noise (such as traffic road sounds transmitted by playback) on frog communication. Once I am in position, I can play the anthropogenic sound, and record the frog’s call. I take these recordings back to the lab and experience the most rewarding aspect of my efforts to find these frogs. The recordings are transformed into graphs of the frequency and length of each call. Although I cannot hear the sounds my frog makes, I can see them! After seeing the sound I can analyze several call variables and calculate various statistics.

Would I recommend field work such as mine to somebody who finds themselves in my predicament? If you are open to creative workarounds, such fieldwork is possible for all. Having a field companion, using signs to communicate, and making use of the amplification provided by my recording equipment has solved the majority of my problems. Most important of all, having support from your mentor and other people who can help and you can trust is crucial. I do not intend to continue with bioacoustics research after I graduate, but if I need to mentor any students in the area, I’ll be happy to do it. I worry about my hearing loss too, in thinking of how it will affect my teaching in the future, because sometimes I hear words incorrectly and confuse their meaning. But I recently exposed my hearing loss in an interview; reading more at The Mind Hears and on other blogs has inspired me to worry less about my hearing loss and to continue to forge ahead in my career.

 

Biography: My name is Michelle Micarelli Struett and I am a doctoral candidate in the Graduate Program in Ecology and Conservation (where I also received my MS) at the Federal University of Paraná in Curitiba, Paraná, Brazil. My undergraduate was at Maringá State University in Maringá, which is also in Paraná. I am interested in animal behavior, especially in frogs, and in my research will examine multi-modal communication in the Brazilian Torrent Frog (Hylodes heyeri). This unique frog can sing from one or both sides of its mouth (it has two vocal sacs), depending on context. I will attempt to determine what that context is that stimulates those two possibilities (auditive, visual, or tactile), and how anthropogenic noise may interfere with communication and social interactions in this frog. Despite my hearing loss (which primarily encompasses frequencies above 4000 Hz), I have not been constrained from working with frog calls and bioacoustics.