Category Archives: daily grind

Under-represented: Where are all the deaf and hard-of-hearing academics?

-Michele

Through working on The Mind Hears since Sept 2018, I’ve had the chance to meet some amazing deaf and hard-of-hearing scholars and researchers.Our backgrounds, areas of expertise, degrees of hearing, and jobs differ.But one very common experience for deaf/HoH at mainstream institutions (i.e. not at a primary deaf/HoH university), is thae lack of mentors who are deaf/HoH. This isolation drove us to start the blog. But our common experiences lead to the question: Where areall the deaf and hard-of-hearing academics?

The American Speech Language Hearing Association classifies degree of hearing loss on a scale of mild (26-40 db), moderate (41-55 db), moderately severe (56-70), severe (71-90), and profound (91+) (ASHA). Despite these straight-forward definitions, understanding the statistics on hearing loss requires nuance. While tests prove that many people have some degree of hearing loss, only a subset of these folks wear hearing aids or use signed language; even fewer request work accommodations. The National Institute on Deafness and Other Communication Disorders, part of the federal National Institutes of Health, reports that 14% of the working age adult population aged 20–69 has significant hearing loss (Hoffman et al., 2017). This 14% report a greater than 35 decibel threshold for hearing tones within speech frequencies in one or both ears (NIDCD). The number of people with high-frequency hearing loss is double the number with speech range loss (Hoffman et al., 2017). However, not hearing watch alarms or computer keyboards is not considered to be as impactful as missing speech range frequencies.

As Figure 1 shows, the statistics on hearing loss are further complicated by age, which correlates with incidence of hearing loss. Among folks aged 60–69 years, 39% have hearing loss (Hoffman et al., 2017). Within the larger disabled community, we crips joke that we are a community that can recruit new members. Joking aside, the reality is that if you are a hearing person reading this, there is a very good chance that hearing loss will affect you or someone close to you during your working lifetime. The Mind Hearscan be a valuable resource for folks with newly acquired hearing loss.

hoffman age
Figure 1: Modified from Hoffman et al., 2017

So where are the deaf and hard-of-hearing academics? Doctoral degrees are generally awarded to academics between the ages of 20 and 29; the incidence of significant hearing loss within this population is 2.2% (Hoffman et al., 2017). The National Science Foundation’s annual survey on doctoral recipients reports that 54,664 graduate students earned PhD degrees in 2017 (NSF 2017)—wow, that represents a lot of hard work! Great job y’all! Now, if the graduate student population resembles the general population, then we should expect that 1202 of those newly minted PhDs are deaf/HoH. Instead, the survey reports that only 654 PhDs, or 1.2%, were issued to deaf or hard of hearing people (NSF, 2017). This suggests that deaf/HoH PhDs have half the representation that they do within the general population.
Furthermore, the distribution of deaf/HoH PhDs is not even among the fields of the NSF doctoral survey. In 2017, as shown in Figure 2, each of the fields of Humanities and arts, Education, and Psychology and social sciences has a greater percentage of deaf/HoH than each of the fields of Engineering, Life sciences, Physical and earth sciences or Mathematics and computer sciences. It seems like I’ve heard of greater numbers of deaf/HoH scholars and researchers in the fields of Deaf Studies, Deaf Education and Signed Languages Studies than in other fields. This could impact the distribution. Or perhaps some fields are more friendly to deaf/HoH scholars and researchers. Nevertheless, deaf and HoH are underrepresented in all fields within scholars and researchers with PhDs.

2017 stats

So, what can we do? These numbers reveal why so many of us feel isolated in our experiences within academia. The Mind Hears is one effort to facilitate networking and raise awareness of inclusion issues for deaf/HoH academics.

 

 

References

American Speech-Language-Hearing Association. Available at https://www.asha.org/public/hearing/degree-of-hearing-loss/

Hoffman HJ, Dobie RA, Losonczy KG, Themann CL, Flamme GA. Declining Prevalence of Hearing Loss in US Adults Aged 20 to 69 Years. JAMA Otolaryngol Head Neck Surg. 2017;143(3):274–285. doi:10.1001/jamaoto.2016.3527

National Institute on Deafness and Other Communication Disorders (NIDCD), Available at https://www.nidcd.nih.gov/health/statistics/quick-statistics-hearing.

National Science Foundation, National Center for Science and Engineering Statistics. 2018. Doctorate Recipients from U.S. Universities: 2017. Special Report NSF 19-301. Alexandria, VA. Available at https://ncses.nsf.gov/pubs/nsf19301/.

 

Traveling and Conferences: When Bacteria Has a Party

In my first post for The Mind Hears, I want to tell you a little about my background, then outline some strategies that I’ve found successful for traveling and attending conferences.

I have been a regular at my ENT’s (ear, nose, and throat doctor) office since I was young, getting new tubes, replacement tubes, removing cholesteatomas, and repairing perforated ear drums. On a good day, I have about 50% of normal range of hearing—less if I have sinus or ear infections. Because I had my right ear completely reconstructed, I am unable to use any hearing aids effectively. Due to my upbringing in a impoverished rural town, I didn’t have access to speech therapy or options to learn American Sign Language. My loss of hearing wasn’t pronounced as an official disability, so I moved through most of my life trying to find creative ways to be successful at school or professionally. Now I wish I had spoken up more, but the aforementioned lack of resources and accommodations made it difficult.

Traveling is a necessity for (geo)scientists, from fieldwork, attending conferences, or networking with the scientific community. The quickest mode of transportation is air travel with changing pressure and humidity which apparently has a big impact on my sinus system. I remember attending the American Geophysical Union (AGU) Fall Meeting in San Francisco as an undergraduate in 2006, overwhelmed by the size of the conference and harder of hearing than usual. I thought I happened to catch a cold and tried to communicate my fellow scientists in loud poster sessions. I repeated this trip a few more times in graduate school and sure enough, the bacteria in my sinuses decided to have a party that moved to my ears. We all have flora in systems, mine just like to come unannounced and frequently. Later in graduate school, I traveled to Italy for fieldwork and I found myself with (surprise!) a sinus infection. It was not fun being in a foreign country and being unable to communicate at all in the local language; in addition, the infections made communicating effectively with my own team difficult. Nevertheless, I powered through these situations.

circe quote

Because of my experiences, I’ve found myself being more vocal about my needs; I’ve realized that I’m my best advocate. Here are some strategies that have helped me.

Medical help: I have built a great relationship with my ENT and we’ve developed a system for traveling which helps prevent weeks of sinus congestion and nearly complete deafness. I travel for my job too often to make visits to the ENT feasible prior to every trip; but occasional visits a few times a year help. Please note, this is my personal plan; please consult your physician. I take steroidal prednisone and prescription-strength Sudafed right before a flight—this medication regime means I have a better chance of flying with limited, or even better, no sinus impacts. One downside to the medications, however, is that I’m sensitive to the steroid; I feel amped and often can’t sleep that first night if there are significant time zone changes—west coast to east coast in particular. This is not a minor downside; my reaction can make important meetings stressful. But the benefits far outweigh the cons. Since I’ve become a chronic sinus infection patient, normal antibiotics on existing infections don’t work. Proactively heading off infections is my preference, since if I’m at a conference or meeting, I cannot wait the two weeks for the medications to work. Waiting would mean that I’d miss conferences with breakthrough discoveries and vital conversations. I don’t love that I have to depend on medication and the side effects, but it helps me to be an active participant in conferences rather than a passive observer.

Communication tips:

  • Live-captioning platforms and apps are improving, and more conferences are starting to use them for conferences and poster sessions.
  • Teleconferencing:
    • An example is InnoCaption, an app for both Android and iPhone that can be used for teleconferencing meetings. A federally administered fund pays for it, and you must register, as it enables a live stenographer to generate captions. It requires a 4G network or reliable Wi-Fi.
    • Another approach is using smarter work phones that can use programs such as CapTel to do live captioning. These are phones such as the Cisco (model 8861) that does live captions during video. There are also applications such as Jabber that enable you to transfer captions to a computer screen for smart accessibility.
  • Traveling to foreign countries: Google Translate now has several offline dictionaries! Five years ago if you didn’t have Wi-Fi or data, you didn’t have Google Translate. But I recently used Google Translate successfully for Spanish! Google Translate is simple to use by talking into your smartphone—you can get good translations to or from English.

Conferences:

  • I find it helpful to I sit up front in conference rooms both to hear better and be seen.
  • If I didn’t quite catch the presentation, I ask the speakers for business cards to get a copy of presentations or posters.
  • Depend on the conference moderators: Another technique to anticipate impaired hearing depends on the conference size and style. I’ve asked moderators in advance (via email) to repeat questions from the audience if I’m a speaker. This helps to ensure I understand the question and help with accents. I’ve had mixed results—often there is no moderator to contact directly; it means I have to track down that individual in person before the session, which is a lot of work.
  • Normalize captions: The best way to normalize is to use Google Slides or captioned presentations for everyone all the time!

What tricks and tips do you use for communicating?

circeBIO: Circe Verba, PhD, is a research geologist, science communicator, and STEMinst at a government lab. She earned her doctorate in geology and civil engineering at the University of Oregon. Dr. Verba specializes in using advanced microscopy (petrography and electron microscopy) and microanalysis techniques to tackle challenges facing the safe and efficient use of fossil energy resources. Outside of the lab, Dr. Verba is an avid LEGO buff, even designing her own set featuring field geology and a petrographic laboratory.

Captions and Craptions for Academics

-Michele

In recent years, to my delight, captions have been showing up in more and more places in the United States. While I’ve been using captioning on my home TV for decades, now I see open captioning on TVs in public places, many internet videos, and most recently, in academic presentations. Everyone benefits from good captioning, not just deaf/HoH or folks with an auditory processing disorder. Children and non-native English speakers, for example, can hone their English skills by reading captions in English. And nearly everyone has trouble making out some dialogue now and then. But not all captioning is the same. While one form of captioning may provide fabulous access for deaf/HoH, another is useless. To ensure that our materials optimize inclusion, we need to figure out how to invest in the former and avoid the latter.

craptions

To unpack this a bit, I’m going to distinguish between 4 types of captioning that I’ve had experience with: 1) captions, 2) CART (communication access real-time translation), 3) auto-craptions, and 4) real-time auto-captions with AI. The first two are human produced and the last two are computer produced.

Captions: Captions are word-for-word transcriptions of spoken material. Open captions are automatically displayed, while closed captions require the user to activate the captions (click the CC option on a TV). To make these, a human produced script is added to the video as captions. Movies and scripted TV shows (i.e. not live shows) all use this method and the quality is usually quite good. In a perfect world, deaf/HoH academics (including students) would have access to captioning of this high quality all the time. Stop laughing. It could happen.

CART:This real-time captioning utilizes a stenotype-trained professional to transcribe the spoken material. Just like the court reporters who document court proceedings, a CART professional uses a coded keyboard (see image at right) to quickly enter phonemes that steno machineare matched in the vocabulary database to form words. The CART transcriptionist will modify the results as they go to ensure quality product. While some CART transcriptionists work in person (same room as the speakers), others work remotely by using a microphone system to listen to the speakers. Without a doubt, in-person CART provides way better captioning quality than remote CART. In addition to better acoustics, the in-person service can better highlight when the speaker has changed and transcriptionists can more easily ask for clarification when they haven’t understood a statement. As a cheaper alternative to CART, schools and universities sometimes use C-Print for lectures, where the non-steno-trained translators capture the meaning but not word-for-word translation. In professional settings, such as academic presentations, where specific word choice is important, CART offers far better results than C-Print but requires trained stenographers.

Some drawbacks of CART are that the transcription lags, so sometimes the speaker will ask “Any questions?” but I and other users can’t read this until the speaker is well into the next topic. Awkward, but eventually the group will get used to you butting in late. CART also can be challenging with technical words in academic settings. Optimally, all the technical vocabulary is pre-loaded, which involves sending material to the captionist ahead of time for the topics likely to be discussed. Easy-peasy? Not so fast!  For administrative meetings of over 10 people, I don’t always know in advance where the discussion will take us.  Like jazz musicians, academics enjoy straying from meeting agendas. For research presentations, most of us work on and tweak our talks up until our presentation. So getting advance access to materials for a departmental speaker can be… challenging.

Craptions:These are machine-produced auto-captions that use basic speech recognition software. Where can you find these abominationsless-than-ideal captions? Many YouTube videos and Skype use this. We call them ‘crap’tions because of the typical quality. It is possible that craptions can do an okay job if the language is clear and simple. For academic settings, these auto-craptions with basic speech recognition software are pretty much useless.

IMG_3588

The picture at right shows auto-craption for a presentation at the 2018 American Geophysical Union conference about earthquakes. I know, right]Yes, the speaker was speaking in clear English… about earthquakes. The real crime of this situation is that I had requested CART ahead of time, and the conference’s ADA compliance subcontractor hired good quality professional transcriptionists. Then, the day before the conference, the CART professionals were told they were not needed. Of course, I didn’t know this and thought I was getting remote CART. By the time the craptions began showing up on my screen, it was too late to remedy the situation. No one that I talked with at the conference seemed to know anything about the decision to use craptions instead of CART; I learned all of this later directly from the CART professionals. The conference contractor figured that they could ‘save money’ by providing auto-craption instead of CART. Because of this cost-saving measure, I was unable to get adequate captioning for the two sessions of particular interest to me  and for which I had requested CART. From my previous post on FM Systems, you may remember that all of my sessions at that conference were in the auxiliary building where the provided FM systems didn’t work. These screw-ups meant it was a lousy meeting for me. Five months have passed since the conference, and I’m still pretty steamed. Mine is but one story; I would wager that every deaf/HoH academic can tell you other stories about material being denied to them because quality captioning was judged too expensive.

Real-time auto-caption with AI: These new programs use cloud-based machine learning that goes farbeyond the stand-alone basic speech recognition of craptioning software. The quality is pretty good and shows signs of continuous improvement. Google slides and Microsoft office 365 PowerPoint both have this functionality. Link to a video of Google Slides auto-caption in action.You need to have internet access to utilize the cloud-basedScreen Shot 2019-04-24 at 5.26.12 PM machine learning of these systems. One of the best features is that the lag between the spoken word and text is very short. I speak quickly and the caption is able to keep up with me. Before you start singing hallelujah, keep in mind that it is not perfect. Real-time auto captioning cannot match the accuracy of captioning or CART for transcribing technical words. Keep in mind that while it might get many of the words, if the captions miss one or two technical words in a sentence, then deaf/HoH still miss out. Nevertheless, many audience members will benefit, even with these missing words. So, we encourage all presenters to use real-time auto caption for every presentation. However, if a deaf/HoH person requests CART, real-time auto caption, even it is pretty darn good, should never be offered as a cheaper substitution. Their accommodation requests should be honored.

An offshoot of the real-time auto-caption with AI are apps that work on your phone. Android phones now have a Google app (Live Transcribe) that utilizes the same speech recognition power used in Google Slides. Another app that works on multiple phone platforms is Ava. I don’t have an Android phone and have only tried Ava in a few situations. It seems to do okay if the phone is close to the speaker, which might work in small conversation but poses problems for meetings of more than 3 people or academic presentations. Yes, I could put my phone up by the speaker, but then I can’t see the captions. So yeah, no.

What are your experiences with accessing effective captions in academic settings? Have you used remote captioning with success? For example, recently, I figured out that I can harness google slides real time auto-caption to watch webinars by overlapping two browser windows. For the first time, I can understand a webinar.  I’ve got a lot of webinars to catch up on! Tell us what has worked (or not worked) for you.

How to work with ASL-English interpreters and Deaf academics in academic settings

Just like their non-Deaf colleagues, Deaf academics teach students, discuss and present their research, attend various professional meetings, and give media interviews. Communicating and sharing knowledge with others is a critical part of academia. However, not everyone has had experience communicating with somebody using sign language, and many non-signers are unfamiliar with the protocols of working with ASL-English interpreters. Ashley Campbell, the staff ASL-English interpreter at Saint Mary’s University in Halifax, Nova Scotia, and Linda Campbell, a Senior Research Fellow of Environmental Science at Saint Mary’s, have put together a rich set of resources: a series of tip sheets on how best to work with interpreters in various academic scenarios. By sharing these resources with The Mind Hears, Ashley and Linda provide quick reference tools that will simultaneously educate and lessen any stress around facilitating communication through interpreters. Though originally written to facilitate ASL-English communications, these tip sheets can be applied to any settings that incorporate signed language-spoken language communications.

The tip sheets can be found at:

https://smu.ca/academics/departments/environmental-science-work-with-interpreter.html

Do you have ideas on further tip sheets to add to this resource? Are there other recommendations that you would add to the existing tip sheets? Please let us know what strategies you have found useful in educating non-signers, and help Ashley and Linda expand the reach and utility of the resources they have created. Write to Ashley at Ashley.N.Campbell@smu.ca or share your thoughts in the comments below.

 

Ashley Campbell

Since 2015 I have been the staff ASL-English interpreter within the Faculty of Science at Saint Mary’s University in Halifax, Canada. My first exposure to sign language was in Belleville, Ontario where I lived for a short period early in life. Many years later I took ASL night classes for enjoyment and through learning the language and culture I became interested in studying it more formally. I graduated from an interpreting training program in 2010 and along with interpreting have volunteered for both provincial and national interpreting association boards. I have a passion for sharing knowledge with the mentality of “each one, teach one”. When I’m not working I am a mom to a very active toddler, cooking feasts for my family, and enjoying the odd Netflix program.

Linda Campbell

Dr. Campbell is a Professor and a Senior Research Fellow at Saint Mary’s University in Halifax.  She moved to Halifax from a Canada Research Chair (Tier II) faculty position at Queen’s University in Kingston. Her research and teaching at Saint Mary’s University focus on contaminants in the environment and on sustainability / resilience issues, with emphasis on aquatic ecosystems and water resources. Currently, Dr. Campbell’s research group is examining environmental contaminants across the Maritimes and around the world, with projects looking at impacts of legacy gold mine tailings from the 1800’s and contaminant transfer in aquatic food webs, birds, bats and humans.

New Year’s Resolution: Make Your Workplace Accessible

The new year brings a fresh start to our lives; it’s a natural time to reflect on the year past and make plans for the coming year. For your new year, why not work towards making your academic workplace more accessible for your deaf/HoH colleagues? To help in this effort, we’ve assembled a list of guidelines that might improve your workplace’s inclusivity.

Ideas on this list come from a variety of sources but primarily our own experiences. Would you like to add to or revise the list? We welcome your comments and suggestions directly to the linked  google doc.   We will endeavor to update the list posted below as we collect more comments and suggestions on the google doc. If you find that you want to explore a topic in more detail, we encourage you to write a blog post for The Mind Hears—we will link your post  to this list.

What can you do to improve the academic workplace for your deaf and hard-of-hearing colleagues?

Overarching philosophy: If a participant requests accommodation for a presentation or meeting, you can work with them to figure out the best solution. It may be signed interpreters (there are different kinds of signing), oral interpreters, CART (Communication Access Realtime Translation), or FM systems (assistive listening devices). It could be rearranging the room or modifying the way that the meeting is run. Keep in mind that what works for one deaf/HoH person may not work for another person with similar deafness. What works for someone in one situation may not work at all for that same person in another situation, even if the situations seem similar to you. The best solution will probably not be the first approach that you try nor may it be the quickest or cheapest approach; it will be the one that allows your deaf and hard-of-hearing colleagues to participate fully and contribute to the discussion. Reaching the goal of achieving an academic workplace accessible to deaf/HoH academics is a journey; we’ve assembled this list to capture just a few tools that can help us on this journey.

Presentations  

  • Leave sufficient lights on in the room so that the speaker’s face and interpreters (if present) can be seen.
  • Have presenters use a microphone when it exists; do not let them assume they don’t need amplification. Ditto for audience questions.
    •  Note: check that the microphone system works well before the presentation. A bad microphone system can be worse than none at all
  • Have presenters repeat the questions from the audience before answering
  • If the presenter is deaf/HoH, the convener/host should be ready to repeat audience questions.
  • Encourage all presenters to use real-time auto-caption with Google slidesor Microsoft’s Presentation Translator add-on for PowerPoint (for Windows only at this point). At the end of January 2019, Microsoft Office 365 will include built-in real-time auto-caption. Our experience is that the AI with these programs far outperforms typical voice recognition software and has less lag than CART.
  • If speakers are using videos, encourage them either to turn on captioning for the videos (CC button, usually on lower right) or eliminate use of videos without captioning.
  • If CART services are provided for deaf/HoH participants, consider projecting the captioning onto a screen so that all in the room can benefit.
  • When available, use “looped” rooms for presentations (indicated by the symbol at right) that allow users of hearing aids and cochlear implants with telecoil functionality to access amplified sound directly
    • In the UK and US (2010 update to Americans with Disabilities Act), loop systems are mandated by law for any public venues that have amplified sound (summary of US regulation). However, our experience in the US is that few universities have such rooms for meetings and departmental presentations. In contrast, some of us have noticed that in the UK virtually all public institutions (even grocery stores!), have loop systems, but they are almost never turned on. It may be wise to notify the hosts 2 or more days in advance to make sure the loop system is powered up and turned on.
    • Some hearing aids and cochlear implants may not transmit looped sound and ambient sound at the same time; so don’t bother chatting with your deaf/HoH neighbor during the main presentation!!

Meetings > 10 people (e.g. faculty meetings) 

  • Start the meeting with a communication check. “Is this communication set up working for everyone?”.
  • As much as is possible with a large group, have all participants sit around a table or set of tables so that they face each other.
  • CART services can be helpful for meetings where multiple people are speaking. We have found that having a CART captionist in the room works better than working with a remote  captionist; having several microphones in the room does not always provide clear access to the speakers for the remote captionist.
  • Having a microphone that is passed from speaker and transmitter to a computer can help CART or one of the better-quality real-time auto-captioning softwares.
  • An FM system (assistive listening device) can help for such meetings. Using the microphone/transmitter as a ‘talking stick’ ensures that all conversations are amplified.  You can also place an onmi-directional FM microphone (or, even better, two) in the center of the room to catch conversation around the group.
    • Note: Unlike looped rooms, FM systems work with specific hearing aids or cochlear implants, so if the meeting has more than one deaf/HoH person using FM, the technology issues can become complex.
  • If conversation devolves to rapid interjections, the discussion leader should rein in the conversation and recap what was discussed.
  • For quick conversations, signaling the next speaker, for example by raising a hand, can help deaf/HoH know where to look next for speech reading. Hearing aids and cochlear implants are notoriously bad for directionality of sound and some of us only detect sound on one side. While interpreters strive to indicate who is talking throughout conversations, visual signaling can help us track the conversation
  • The meeting organizer should check in periodically to ensure that the communication environment is working for everyone.
  • A written summary distributed afterwards to meeting participants can ensure that everyone has the same information.

Meetings < 10 people (e.g. committee meetings) 

A lot of the strategies for larger meetings also work for small meeting. The following include notes specifically for meetings of smaller groups.

  • Have participants sit in a circle, so that all faces are visible for speech reading. Conference rooms with long narrow tables can be challenging.
  • Use the smallest room possible to accommodate the size of the meeting
  • Encourage meetings in rooms with minimized resonance; rooms with carpet and soundproof walls are better listening environments. Also, avoid rooms with a lot of external noise (e.g., busy roads or construction).
  • Use rooms with window treatments that can be adjusted to reduce glare so that speakers are not backlit.Discourage people from talking over one another in meetings.
  • Check in periodically to ensure that the communication environment is working for everyone.
  • Deaf/HoH people are notoriously bad at catching jokes, as comments are typically made more quickly they we can track conversation. It can be helpful to repeat jokes for your deaf/HoH neighbor.

Conversations   

  • Face people while conversing.
  • If the deaf/HoH person is using an signing or oral interpreter, direct all conversation to the deaf/HoH person, not the interpreter.
  • When you’re in a noisy room, you won’t be heard by speaking with cupped hands directly into the deaf/HoH person’s ears, because in this situation we can’t speech read your face. Similarly, we cannot understand whispering behind a cupped hand or into our ears. Come to think of it, whispering hardly ever works because the sound and speech reading information are so distorted—best avoided altogether.
  • Avoid covering your mouth. If you are chewing, please wait to speak until you are done chewing. Also avoid blocking visibility of your mouth with your cup at gatherings with coffee/tea.
  • If a deaf/HoH person asks for repetition, please repeat as closely as possible what you just said. Sometimes we hear part but not all. If you change up the words to reframe what you said, we are back to square one.
  • If a deaf/HoH person asks for repetition/clarification, never say “Oh, it’s not important.” This conveys that you don’t value their participation in the conversation. So even if you think your comment is not worth repeating, please repeat yourself to avoid excluding your colleague.
  • When a deaf/HoH person joins the conversation, it’s helpful to give them a little recap of the current topic of discussion.
  • Hearing aid and cochlear implant batteries go dead at the most inopportune times. Most of us go through one or more batteries per aid each week; the chances of this happening while we are in a presentation, meeting, or conversation are quite high. As we search for and replace the fiddly batteries, please keep in mind that we are missing out on the conversation.

Incidental conversations (e.g. passing in the hallway)  

  • When greeting your deaf/HoH colleagues in passing, give a wave. We may not hear a quiet greeting.
  • To get the attention of deaf/HoH colleagues, waving your hand where we can see it is more pleasant than being shouted at.
  • Not all deaf/HoH people wear hearing aids throughout their workday. Some of us enjoy periodically being able to take out our hearing aids or turn off our cochlear implants and focus in the quiet.
  • Our communication skills can vary with fatigue level. The cognitive fatigue of speech reading is taxing so that after a few hours of teaching and meetings with spoken conversation, we may avoid all conversations or switch from speaking to signing.
  • Not all deaf/HoH people speech read. Some of us rely on writing notes or using voice recognition apps on our mobile devices; you may be asked to communicate using modes unfamiliar to you. A motto of the deaf community: use whatever form of communication works.
  • Not all people are easy to speech read. People with facial hair and people who either don’t move their lips/face or over-enunciate can be very difficult to understand. Some of us hear high pitched voices better than low and some of hear low voices better. For better or for worse, many of us avoid conversations with people we don’t understand even though they may be wonderful people. It is not rude to ask if you are easy to understand and how you could be better understood.

You may have noticed that all of these considerations not only increase access for deaf and hard of hearing but make these situations more inclusive for all participants, such as non-native English speakers. Some of these strategies ensure that the loudest in the group doesn’t monopolize conversation and allow space for less confidence participants. If you make your workplace more accessible for your deaf and hard of hearing colleagues, you will make a more accessible workplace for everyone.

Other resources for deaf/HoH including papers about d/Deaf in academia

Contributors include: Michele Cooke, Ana Caicedo, Oliver Lamb, Wren Montgomery, Ryan Seslow, Megan Maxwell

Last revision date: 2 January 2019

 

 

Deaf Gain -> diverse and stronger research

Woman gesturing and wearing behind the ear hearing aids
photo by John Solem (UMass Magazine)

-Michele

In May I received the outstanding researcher award from the College of Natural Sciences at UMass Amherst. This was a great honor and I even got to give a 3-minute acceptance speech. While the speech starts with some of the challenges, the main point is that my deafness shapes my approach to science in ways that benefit my research. PhD student extraordinaire, Laura Fattaruso, made a video of me re-enacting the speech and here is the transcript:

Academic success was not always expected of me. I have a severe-profound high-frequency hearing loss and was language delayed in my early education. The letters on the page don’t match the sounds that I hear so it took until 2nd grade for me to figure out the basics of reading.  I also had years of speech therapy to learn how to pronounce sounds that I can’t hear.  Just before middle school, some visual-based aptitude tests showed I actually had some talent and I also started to do well in math.  So, then teachers started expecting more of me and as you probably figured out, I caught up well enough.

Now, as a professor at a University that serves a predominantly hearing community, my broken ears are a nuisance sometimes. But this 3-minute speech is not about overcoming challenges.  Instead, I want to talk about something called <signing Deaf gain>. This sign is translated into English as Deaf gain or Deaf benefit. This term coined by Gallaudet scholars describes the value that Deaf and Hard-of-Hearing people provide to the larger community because of their differences.  Our ecology colleagues tell us that more diverse ecological communities can better withstand stress than homogenous communities – so too with science communities. All of our differences make CNS stronger.

Here are three examples of deaf gain in my research approach

Deaf gain1: My way of doing research is intensely visual.  My students know well that I have to show 3D concepts in the air with my hands and sketch whenever we do science.  I don’t believe it until I can see it.  We use the figures in our papers to tell the scientific story.  In this way, my research is not about elegant verbal arguments and instead focuses on connections between ideas and demonstration of geologic processes.   

Deaf gain 2: Deaf are known for being blunt. My students will tell you that my reviews can sometimes be painfully blunt. For deaf scientists, being understood is never taken for granted.  So, we strive for clear and direct communication of our science.

Deaf gain 3: Being deaf in a hearing world requires stamina, courage, empathy, self-advocacy, a flexible neck to lip read people in the corners of the room and a sense of humor.  An added benefit is being able to accessorize using blue hearing aids with blue glitter molds that match any outfit.

 I’ve been lucky to have great students and colleagues who have join up in my Deaf way of science and we’ve had a blast.  Thank you.

Do you share some of these characteristics?  Are there ways that deaf/HoH gain has shaped your scholarship or research?

The more I missed, the more I made

RyanSeslow1

-Ryan

I am overcoming a lot of my fears by directly putting myself in positions where I have to talk about how hearing loss and being deaf has affected my life. As a college professor (yep, for 14.5 years now) my job requires me to be in front of a lot of people each and every day. I have been trying to be more direct with my students and colleagues, and tell them how I feel and what I need from them. My honesty about who I am and what I am missing makes getting to mutual feelings of compassion and empathy a little easier. This mutual empathy helps both parties make the emotional connection that I feel is necessary in education.

Often, I have to ask people to repeat themselves, or to speak more slowly, or loudly. I often incorrectly answer questions and everyone laughs or looks at me with a priceless look of confusion. These things also make me laugh as shared misunderstandings create connections and remind me to take myself lighter. That connection is where I begin to know someone, because they would now know me as I am. I need to be more honest and forward about why. It is my responsibility to make people aware of what and how much I am missing. It is natural to seek deeper meaning out of yourself and examine how that applies to the world around you. We grow through such self-discovery as we interpret ourselves in relationship to our time here on this planet. I have, however, learned the hard way that it can slip away all too fast if we hide from ourselves. Hiding only seems to perpetuate more hiding. I often wonder how many other people with severe hearing loss and deafness are out there hiding from their deafness as I used to do?

Dealing with this process of healing and facing my fears (it’s an ongoing process), I recently had an epiphany about my work as an artist. Possibly you are already familiar with my work, but if not, I have been a high-volume output kind of artist for my whole life. My style is to make many things At Once. Volume and production, productions in volumes and accumulation. What a great metaphor, and right under my nose! By connecting my hearing limitations to the question, “Why do I make so much stuff?” or “Why have I put the emphasis on physical output and high volume of works produced?” I suddenly get it. My work habits are all about filling in the fear of how much I have been missing and have missed in this world.

Overcompensation.

I missed a lot beginning in early childhood; and as I grew older, the more I was not hearing the more art I would make. Production and Volume = Missing. The funny part is, most of the art that I make and have made is not dark or representative of my frustration. I do not try to communicate unhappiness, but I do see a huge common thread of a lack of meaning in my work before I became more aware of the impact of my deafness. Subsequently, the context of my art has changed and this plays a huge role in the kind of work that I greatly need and want to produce. The best is really yet to come.

RyanSeslow2

The animations in this post continue to explore the soundless looping GIF format. These pieces begin as digital image fractures and manipulations. They are re-composed and organized as new imagery and content. How does that process play a role in communication? Missing 5-8 words in any sentence can have a profound effect on how one may respond, comprehend or take away from an interaction. What does this look like when that actual missing fragment(s) take place? Repetition is used to display the distortions and metaphors for how this experience may be interpreted visually. If you are a hearing person viewing these animations you may be “missing” the usual audio aspect to the videos you see, watch, and hear each day.

This post is slighted edited from the original on Ryan Seslow’s blog  where you can see more of his art.

What’s In a Name?

—Ana

What’s in a name? that which we call a rose
By any other name would smell as sweet.

― William ShakespeareRomeo and Juliet

Shakespeare’s quote is overused, but the temptation to use it for today’s blog topic was irresistible. I would like to tackle the topic of labels—specifically the question of what label we, individuals who have varying degrees of hearing loss, use to describe our deafness within our professional academic environment.

The World Health Organization (WHO) reports that around 466 million people worldwide have disabling hearing loss (this is a bit over 5% of the population).1They define “disabling hearing loss” as hearing loss greater than 40 decibels (dB) in the better-hearing ear in adults, and greater than 30 dB in the better-hearing ear in children. The Hearing Loss Association of America (HLAA), reports approximately 48 million people in the United State (almost 20% of the population) with some degree of hearing loss.2Because the HLAA estimate includes individuals with slight to severe levels of hearing difficulty (16-90 dB) as well as those with profound hearing loss (>90 dB), their percentage estimate for the U.S. is greater than the WHO’s worldwide percentage estimate. Nevertheless, the numbers help with an important point. Hearing loss is a widespread, worldwide condition; however, how different countries address issues concerning deaf/HoH individuals can vary widely. When it comes to labels, I can only speak to my experiences of living in Colombia and the U.S. I’d like to recount this limited experience and how it has shaped my views, but I really hope our international colleagues will chime in with information that can increase our awareness of how deaf/HoH labels are viewed or used worldwide.

In the U.S., the currently prevalent and most accepted terms seem to be deaf, Deaf, and hard of hearing (see, for example, recommendations from the National Association for the Deaf).3Capitalizing the ‘D’ in Deaf holds special meaning in encompassing a group of deaf people that share a language (ASL) and a culture, and advocacy by Deaf people has contributed enormously to a nuanced understanding of how those in the deaf/HoH communities identify themselves.

In Colombia, the word “sordo” (Spanish for deaf) is the only label I know for people with hearing loss. However, “sordo” often conjures the image of a person who communicates exclusively by signed language (note, however, that Colombia did not officially recognize Colombian sign language until 1997).4Moreover, a 1996 law created to define the rights of deaf people in Colombia defines “sordo” as a person who presents a hearing loss of more than 90 dB that impedes acquisition and utilization of spoken language in adequate form.4 As an individual who relies primarily on hearing aids for communication, I have often felt at a loss in Colombia for words to describe myself, since “sordo” seems to have such a narrow definition. As a country, Colombia has not undertaken a comprehensive discussion about the best language to use when characterizing people with disabilities, to the extent that I know of no widespread recognized term for myself. Thus, for me, the abundance of labels to choose from in the U.S., even if each comes with some historical baggage, has always felt like a relief.

Perhaps this partly explains why I often reach for a term to describe myself that has fallen out of favor among many: “hearing impaired.” My comfort with this term may also stem from my scientific background. It feels like a useful description that (most of the time) explains relatively accurately that I have difficulty hearing, but will communicate through oral means (with all its attendant problems). Calling myself hearing impaired seems to me equivalent to saying that I am very nearsighted (and thus the shape of my eye causes images to be focused in front of my retina), or that I have a skin discoloration caused by a vascular anomaly (i.e. a port-wine stain) on my left hand. I’m not bothered by the term’s focus on something about me being “wrong.” Maybe because I’m a biologist I feel very aware that my sensorineural hearing loss is due to damage to my tiny cochlear hair cells, so that they cannot accurately transmit sound vibrations to my auditory nerve for my brain to interpret. “Damaged cells” fits comfortably within my definition of impairment.

Do I worry that the label I use will be taken by others to define me? The thing is, I do feel that my hearing loss contributes to who I am. Being Colombian also contributes to who I am, as does being an evolutionary biologist, being nearsighted, and being an introvert (which is probably due to some aspect of brain chemistry somewhere). The color of my skin, the color of my hair, my physical dexterity (or lack thereof) all contribute to who I am. None of these traits explains everything about me, but I am fairly certain that they, and others I do not list, have all shaped the person I am today. I therefore find it hard to get riled up about being referred to as hearing impaired or a hard of hearing person.

So what label to use? My opinion is that is that your label should be the one that you prefer. A label should feel accurate, non stigmatizing, non belittling, and comfortable. But the flip side to that is that nobody, not even our fellow deaf/HoH academics, can possibly guess what we prefer. The onus is thus on each of us to introduce ourselves, and let our colleagues know how we identify. And the onus is also on each of us to be kind and patient when our colleagues use something other than our label of preference.

What do you think? Is there an optimal way to refer to all deaf/HoH people in our community? An optimal way to introduce ourselves to our academic colleagues and students?

To our academic colleagues outside the United States: we need to hear from you to help us achieve an expanded understanding of the deaf/HoH experience around the world. How do you most often refer to yourself to others? Are certain labels regarded negatively?

 

1http://www.who.int/news-room/fact-sheets/detail/deafness-and-hearing-loss

2https://www.healthyhearing.com/report/52814-Hearing-loss-statistics-at-a-glance

3https://www.nad.org/resources/american-sign-language/community-and-culture-frequently-asked-questions/

4Zambrano-Valdivieso, O; Almeida-Salinas, O; Suárez-Uribe, E; Restrepo-Pineda, J. (2017). La enseñanza de la lengua de señas colombiana como estrategia pedagógica para la inclusión educative—Estudio de caso. Revista Inclusión & Desarrollo, 5 (1), 37-48.

Why the world needs another blog

— Ana and Michele

We are two deaf/HoH tenured scientists at the University of Massachusetts in Amherst, and this summer we decided we needed to create a blog.

For Ana it was the cumulative frustration of feeling that after almost 12 years of teaching, she often still struggled with the same instructional challenges that had bedeviled her at the beginning of her career. For Michele it was a realization that she had shed her fear of having her hearing loss define her professional image as a research scientist. For both of us, it was a wearying sense that for too long we had each been re-inventing the wheel—continuously looking for solutions to problems that we cannot possibly have been the first or only ones to experience. “If only we had other people like us to talk to and exchange ideas with,” we thought. “Faculty who also fret about the best way to introduce their hearing loss to their students; postdocs who also have to worry about how to handle the soft-spoken person in the back row asking a question after their talk; grad students who are also trying to crack the code on how to be full participants in fast-paced journal clubs.” In the past, we had individually (and unsuccessfully) searched for blogs by deaf/HoH people working in academic settings that shared their experiences. This summer it finally dawned on us that we could create our own.

“But wait a moment!” you may ask. “You both work in the same institution—surely you talked to each other and exchanged strategies for success?” We’re somewhat embarrassed to admit that in all of our years of overlap at UMass, we actually didn’t engage that much with each other. The reasons for this are varied and nuanced and may be good sources for future blog posts. When Ana mentioned the idea of a blog to Michele a few months ago, we both instantly realized, this is it. We need to do this! We are on a mission, because people like us need this blog! So, despite all the myriad other demands on our time, we are making a blog.

Our aspiration is to create a forum for discussing the unique challenges shared by deaf/HoH professionals in an academic environment. We have two main objectives: first to build a network of academics with hearing loss from all career stages and from a diversity of fields. Through this network, our second objective is to share experiences, failures, and, most importantly, potential solutions to the professional challenges we encounter.

People with hearing loss make up 15% of the adult U.S. population, with likely similar percentages worldwide, but the proportion undeniably becomes smaller in academia. Because of our small numbers, our best shot at creating a community is online. The community we are gathering runs the gamut of experiences. It encompasses people who are recently deafened to those who were born deaf; those with mild hearing loss to those who cannot hear any sounds; individuals who communicate primarily through sign languages and those who do so verbally; academics in predominantly-hearing institutions and those at Deaf-serving institutions; graduate students initiating their careers, postdocs questioning their next step, and senior faculty who can impact academic culture; deaf/HoH people working in every academic discipline; academics in countries with abundant accommodations for deaf/HoH individuals, and academics in countries with more limited resources. Because the hearing loss experience is so variable and affects each of us in different ways, our best bet at finding solutions and workarounds to the challenges we each face is by including all of our diverse experiences in this shared forum.

We need to come together because being a person with hearing loss in an academic environment is hard. The daily exhaustion of communicating in non-ideal settings, anticipating and planning for future communication challenges, educating unaware individuals, and dealing with the social isolation resulting from communication challenges can drain us of energy, ambition, and time. We will blog about these challenges! While there is comfort in sharing stories and realizing that others are going through similar experiences, we aspire for this blog to transcend being merely a “complaint forum.” Instead, by sharing various ways that we approach different challenges, we hope to build a community toolbox of solutions.

If you are a deaf/HoH academic, please consider contributing blog posts or becoming involved in the discussions. If you know of a deaf/HoH colleague, please spread the word about our blog and help us grow our network. If you want to learn more about the deaf/HoH experience, ask questions and follow this blog. You can help TheMindHears strengthen its impact so that it provides value to each of those who visit.